Join the #Raregivers100 Movement!
It’s time to shine a light on the unsung heroes supporting those living with rare, chronic, and complex conditions—those who uplift, inspire, and transform the emotional journey of Raregivers everywhere.
From musicians and athletes to caregivers and professionals, the #Raregivers100 celebrates individuals making an extraordinary impact across the globe.
Let’s bring visibility to the people changing lives behind the scenes.
Let’s celebrate the heart, strength, and dedication of this powerful community.
Together, we honor rare greatness.
Interact with us on social media using #Raregivers100
What is a “Raregiver”?
1. Those rare individuals who hold both hope and grief in the same human heart.
2. Caregivers, patients, family, friends, teachers, doctors, healthcare professionals, patient organization leaders, researchers, academics, advocates, biopharmaceutical employees, gamers, entertainers, technologists and all others in the community giving their talents, time and life-force to further and honor chronically medicalized lives.
Meet the Raregivers
A visual tribute to the changemakers.
Browse through the images and stories of individuals making a difference.
Coming Soon
Send In Your Nomination Today!
#Raregivers100
Nomination Criteria: Your nominee has a prominent “digital footprint”, meaning they are known publicly through active social media posts, blogs, email, podcast, web, performances, thought leadership, etc. In short, they are highly engaged in their community, whatever that community may be, and they have a track record of shining a light on individuals living with rare, chronic or complex diseases, their caregivers or the healthcare professionals in that ecosystem of support. They may also provide education about the emotional impact of the caregiver experience or serve individuals living with complex medical situations through art, science, advocacy or philanthropy.
