Promotional image supporting Rare Disease Day, displaying a colorful background with text "We Support Rare Disease Day," a logo for Rare Disease Day and Raregivers.global, date "28 Feb 2025," and the hashtag #RareDiseaseDay.

February 28, 2025

On February 28th, we will celebrate Rare Disease Day, a momentous day dedicated to raising awareness about the challenges faced by those living with rare diseases and their families. At our organization, Raregivers™ , we stand in solidarity with this global initiative, advocating for increased understanding, support, and resources for rare disease patients. Through our commitment to Rare Disease Day, we strive to amplify the voices of those often marginalized in the medical community.

On February 29th, we celebrated Rare Disease Day by joining our partners NORD (National Organization of Rare Disorders) at NBC’s The TODAY Show. It was an amazing moment for our Founder & CEO, Cristol Barrett O’Loughlin, to share with her daughter, Chloe O’Loughlin, and Board Member, Paige Rivard.

Two women smiling in a city setting, wearing warm clothing with scarves, in front of several flags displayed on poles.

Chloe & Cristol O’Loughlin

Four people holding signs and a banner promoting Rare Disease Day, with text including 'Rare givers global' and '#SHOW YOUR STRIPES.' The event is associated with TODAY.com, and the banner mentions February 29, 2024, as Rare Disease Day.
A person being interviewed on a city street, standing near a professional camera with a microphone. The individual is wearing a coat, gloves, and a scarf, with a sash displaying the words "Rare Gives." Flags are visible in the background along a pathway.

Rare Disease Day Interview

Camera crew filming a woman sitting in front of a colorful painting, wearing a black and white striped sweater.
A person wearing a white vest and green scarf with "Rare givers global" emblem, standing indoors next to a plant.

Scarf designed by Chloe O’Loughlin

Two people talking in an art gallery with various photographs displayed on the walls. One person is holding papers.

Positive Exposure Art Gallery

NORD Interview

The TODAY SHOW

Colorful Rare Disease Day promotional image with a sun logo, stating support for Rare Disease Day on February 28, 2025. Includes website rarediseaseday.org and hashtag #RareDiseaseDay.

We express our deepest gratitude to the rare disease families who have courageously shared their testimonials, shedding light on their unique journeys as Raregivers. Your unwavering strength and resilience inspire us to continue our mission of fostering a more inclusive and supportive environment for all individuals impacted by rare diseases. Together, we are making strides towards a brighter future for the rare disease community.

Logo featuring overlapping colorful handprints behind a stylized figure, representing Rare Disease Day.

Thank you to our incredible raregiver families for helping shed a light on the rare disease community. Save-the-date for "Rare Disease Month 2025”.

Family with two adults and three children sitting on a red blanket in an autumn setting, text "Susie Dugan, Rare Mother // UBA5" with "Full Story" button.
Two people in costumes: one dressed as the Beast and the other as Superman in a wheelchair. Text reads, 'Christopher Velona, Rare Father, CLN8 Batten Disease.' There's a 'Full Story' button.
A family photo featuring two adults and two children. The woman holds a child in her arms while smiling toward the camera, alongside a man and another child standing nearby. Text reads "Michelle Fruhschien," relates to Jordan’s Syndrome, with a "Full
Family in matching Christmas pajamas sitting by a decorated tree, featuring stockings labeled 'Mom' and 'Dad', with logo and text 'Raregivers' and 'Jillian Arnold' on beige background.
A smiling woman and a child wrapped in a red blanket with a tracheostomy tube are featured on a promotional card for Raregivers. The text reads "Abby Zachritz, Rare Mother, Anoxic Brain Injury" and includes a button labeled "Full Story."