Padma Gordon

The truth is that when you receive a diagnosis, you are entering into an entirely new season of life. When you also have a neurotypical child, you will need to adapt to learning how to parent two very different humans at the same time.

Padma Gordon

You may find it helpful to look back in time and reflect on the things that you used to do before you were a raregiver.

Christopher Velona

Debt can be a significant source of stress, impacting both financial stability and overall well-being. However, with the right approach, managing and paying off debt is entirely possible.

Pamela Russell

At this very moment, a world of possibilities lies open before you. Even when life feels challenging, the universe offers countless opportunities for growth and transformation.

Pamela Russell

True celebration is a spontaneous expression of joy that arises from deep within, independent of external circumstances. It doesn't wait for special holidays, formal occasions, or perfect weather.

Pamela Russell

In the midst of life's chaos and stress, we often find ourselves disconnected from our true essence—the inner Source of energy that nourishes and supports us.

Pamela Russell

In today’s fast-paced, achievement-oriented world, many of us carry a long list of commitments—work, family, social obligations, personal goals—often believing we should be able to juggle it all.

Padma Gordon

Each week Raregivers are making deep connections with themselves and each other.

Padma Gordon

It's important for you as a raregiver to take care of yourself first, just like if you're on an airplane and there is an emergency, you must put on your oxygen mass first and then help your Rare child.

Padma Gordon

In this contemplation, you may have many feelings including anticipatory, grief loss, and perhaps even a little bit of relief that you are no longer in such an intense caregiving role.

Padma Gordon

Creating a sustainable structure in your life as a raregiver means being intentional and present.

Pamela Russell

Understanding begins with the realization that many of the limits we perceive are often just illusions.

Christopher Velona

Balancing work responsibilities with the needs of a child with a rare disease is incredibly challenging! Does this sound familiar?

Pamela Russell

Healing begins with the courage to acknowledge and understand our wounds. Each of us carries our own unique scars, often protecting them with a readiness to be hurt again.

Christopher Velona

In the vast landscape of professional life, the workplace often feels like a world unto itself—one with its own rules, hierarchies, and dynamics.

Pamela Russell

When we connect with our inner love, being with others and being alone both become natural and fulfilling experiences.

Padma Gordon

Ask yourself whether your life is in balance or not? In order for a Raregiver to lead a relatively balanced life, you need to ask for help.

Padma Gordon

How do you build a sustainable structure that supports you to practice regular self-care, set boundaries and ultimately live in alignment with yourself?

Pamela Russell

In today’s fast-paced, achievement-oriented world, many of us carry a long list of commitments—work, family, social obligations, personal goals—often believing we should be able to juggle it all.

Christopher Velona

Living a fulfilling life hinges not only on one's achievements but also on the quality of their lifestyle and experiences. Maintaining a balanced lifestyle and embracing diverse experiences is crucial for men's overall well-being and personal growth.