Date:

September 12, 2025

Location:

UCSF Aging, Metabolism & Emotions Center

About the Raregivers™ Sustainable Caregivers Summit at UCSF

Join us for an in‑depth learning experience designed for nonprofit leaders and caregiving advocates within the Raregivers™ Coalition. Hosted at the UCSF Aging, Metabolism & Emotions Center, this symposium provides a focused opportunity to engage with research, share expertise, and develop practical strategies that strengthen caregiver support systems—while advancing your own leadership in this critical field.

Summit Experience Includes:

• Evidence‑Based Insights and Research Exchange

  Participate in presentations and discussions led by experts from UCSF and Raregivers Coalition partners, integrating current data and research on chronic stress and caregiver burnout in rare, chronic, and medically complex disease communities.

• Collaborative Working Sessions

  Engage in facilitated group dialogues with healthcare professionals, researchers, and caregiver advocates to identify best practices, explore systemic challenges, and co‑create actionable strategies for sustainable caregiver support.

• Applied Frameworks and Tools
  Gain firsthand exposure to the Raregivers™ Emotional Journey Map & Guidebook, with opportunities to provide feedback, discuss use cases in clinical and home settings, and consider adaptation for broader implementation.

• Program Development and Road‑Mapping
  Contribute to the design of a scalable delivery model for caregiver support—defining training approaches, platform formats, and implementation strategies that can be piloted and studied further in academic and clinical environments.

Workshop Objectives

• Align current status of chronic stress among HCPs and family caregivers.

• Identity best practices for addressing caregiver stress in hospitals and homes.

• Share Raregivers Emotional Journey Map & Guidebook for feedback

• Co-create a scalable delivery model for Sustainable Caregiver support.

• Establish next steps with future stakeholders, sponsors and recipients.

Why It Matters

At Raregivers, we believe in the power of education and knowledge exchange to drive meaningful change. Healthcare professionals, nonprofit leaders, and family caregivers benefit when they have access to research‑based insights, practical strategies, and opportunities to learn from one another. By prioritizing the well‑being and professional growth of those who care for others, we strengthen the systems that support them—creating lasting impact for individuals, families, and communities.