MEET THE TEAM

  • Woman with dark hair wearing a blue blouse, standing outdoors with greenery in the background.

    Cristol Barrett O’Loughlin

    FOUNDER & CEO

    Based in the Bay Area and operating globally, Raregivers™ offers relief services to caregivers through sustainable health and wellness training, transformative retreats, and a globally connective mother-to-mother network. Raregivers™ believes in uplifting the family by caring for the caregivers, particularly mothers who are the primary caregiver 82% of the time. Founder & CEO, Cristol Barrett O’Loughlin, illustrates the unthinkable realities of losing three older brothers to the rare genetic disease Mucopolysaccharidosis, as well as the family difficulties (and triumphs!) while caring for children with a life-limiting illness in her TEDx talk Caring for the Caregivers.

Job advertisement for a Community Manager position with "looking for a Community Manager, Apply Now" text and a "Rare givers global" sun logo.

We are seeking *NEW* Volunteer Community Manager!

Are you passionate about supporting caregivers and building meaningful connections? Raregivers is looking for a dedicated Volunteer Community Manager to help engage, support, and grow our incredible global caregiver community.

If you love fostering conversations, organizing community initiatives, and making a real impact, this is your chance to be part of something special!

Interested? Fill our the form below!

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Stacey Bailey

Vice President, Science Communications / Chan Zuckerberg Initiative

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Phyllis Petersen Barrett

Rare Mother + Writer + Owner | The Bear Facts

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Jana Benesh, PhD

Clinical Strategy & Patient Advocacy Lead Scientist, Center for Rare Diseases - Scientific Affairs | ICON plc

Co-Chair, Raregivers Mental Health Advisory Council

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Lisa Burke

Creator + Presenter | RTL Today Host, Radio-Television Luxembourg

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Eden Phillip Clore

Retired (after 31 years) | United States Air Force

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Gina Glass

Board Treasurer | Executive Director, DreamSickle Kids

Rachel Halsall

Executive Systemic Coach, Facilitator, Corporate Speaker / Rachel Halsall Inc

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Jill Hull

Client Executive | Milestone Technologies

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Carol Jacobs

Professor, Gerontology Institute, Georgia State University | Founder, CaregiversCare | Retired IBM (27 years)

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Cristol Barrett O'Loughlin

Board President | Founder & CEO, Raregivers

Creator & Lead Strategist, Raregivers™ Coalition | Co-Chair, Raregivers Global Leadership Council

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Pam Rattananont

Board Chair / Director, Patient Engagement & Advocacy (GI & Lung Cancers) / BioNTech Us

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Jay Singh

Board Co-Chair, Global Leadership Council / Career Senior Foreign Service Officer, US Department of State

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Paige Rivard

Board Secretary | Former CEO of the Prader Willi Syndrome Association