MEET THE TEAM

  • Woman with dark hair wearing a blue blouse, standing outdoors with greenery in the background.

    Cristol Barrett O’Loughlin

    FOUNDER & CEO

    Based in California and operating globally, Raregivers™ delivers emotional relief to caregivers through sustainable health and wellness training, transformative retreats, and a globally connected peer-to-peer support network. Raregivers™ believes in uplifting the family by caring for the caregivers, particularly mothers who are the primary caregiver 82% of the time. Founder & CEO, Cristol Barrett O’Loughlin, illustrates the unthinkable realities of losing three older brothers to the rare genetic disease Hunter Syndrome or Mucopolysaccharidosis II, as well as the family difficulties (and triumphs!) while caring for loved ones with life-limiting conditions in her TEDx talk Caring for the Caregivers.

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Jana Benesh, PhD

Clinical Strategy & Patient Advocacy Lead Scientist, Center for Rare Diseases - Scientific Affairs | ICON plc

Board Secretary, Raregivers | Mental Health & Wellness Practitioners, Advisory Council (Board Seat)

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Lisa Burke

Creator + Presenter | RTL Today Host, Radio-Television Luxembourg

Cristol Barrett O'Loughlin

Founder & CEO | Raregivers Inc.

Board President, Raregivers | Creator & Lead Strategist, Raregivers™ Coalition | Co-Chair, Raregivers Global Leadership Council

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Phyllis Petersen Barrett

Rare Mother + Writer + Owner | The Bear Facts

Rachel Halsall

Executive Systemic Coach, Facilitator, Corporate Speaker / Rachel Halsall Inc

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Jill Hull

Client Executive | Milestone Technologies, Inc.

Board Treasurer, Raregivers

Jennifer Waldrop

Executive Director I Rare Disease Diversity Coalition

Raregivers Coalition, Advisory Council (Board Seat)

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Jay Singh

Retired Career Senior Diplomat | Former Foreign Service Officer, US Department of State | Founder and Principal, Development Impact Global Group (DIGG) LLC

Chairperson of the Board, Raregivers | Co-Chair, Raregivers Global Leadership Council

Sam Humphrey

Actor Producer I The Little Guy Collective

Raregivers 100 Honorees, Advisory Council (Board Seat)

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Carol Jacobs

Professor, Gerontology Institute, Georgia State University | Founder, CaregiversCare | Retired IBM (27 years)

Afshan Rizvi Hussain

Managing Director, Global Rare Disease Lead | HAVAS Health