Self-Care: Becoming Resourced & Resilient

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As a Raregiver, it can be easy to lose yourself in caring for your Rare child or children. You may experience a radical shift in your perspective on life and being the parent of a Rare child becomes your primary identity. When this happens, self-care often falls away or drops to the bottom of your impossibly long to do list. Priorities shift and you dive headlong into learning everything about your child’s Rare disease as well as managing their care each day. Please join us for a conversation with other Rare caregivers who are finding ways to resource themselves as they care for their Rare families. Come ready to expand your self-care toolkit. Bring an open heart and trust that you have wisdom to share.

We had a beautiful discussion today with one of our Rare Mom’s talking about the triumphs and challenges of prioritizing self care. One way that has been helpful to make sure self care time is honored is to put it on the calendar. Like any other event or appointment, setting a date and time and sticking to it seems to help set it in motion more often. Finding the activities or modalities of self care that feel resonate and obtainable are important. Setting aside the time to refuel, refocus or just BE, is paramount. Especially for Rare Moms, deep breath and awareness of the body and daily check ins are vital.

Learn more and get support: www.raregivers.global

Cristol O'Loughlin

Cristol Barrett O’Loughlin is a seasoned executive and storyteller. As Founder and CEO of Raregivers™ (formerly ANGEL AID), Cristol is fiercely passionate about providing social, emotional, physical and financial relief to Raregivers™ ~ patients, caregivers, and professionals who hold both hope and grief in the same human heart. A former UCLA instructor, she co-founded advertising firm, The Craftsman Agency, and is humbled to have advised global brands such as NBA, Walt Disney Company, 20th Century Fox, Microsoft, Cisco and Google. During her tenure at IBM Life Sciences, she helped accelerate advancements in cheminformatics and data-driven biotechnology. Watch her TEDx talk ‘Caring for the Caregivers’ at https://www.raregivers.global/tedx and the ‘Raregivers LIVE’ broadcast from Microsoft to 12 cities around the world.

https://www.raregivers.global
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