Congratulations on Being Named a #Raregivers100 Honoree!

You are a shining example of the heart, strength, and unwavering dedication it takes to support those living with rare, chronic, and complex conditions. Your impact uplifts, inspires, and transforms the emotional journey of the Raregivers community—and now, it’s your turn to be recognized.

From caregivers and advocates to professionals, athletes, and artists, the #Raregivers100 celebrates those making a profound difference behind the scenes.

Thank you for being a beacon of compassion and resilience.
Today, we honor you—a true example of rare greatness.

Interact with us on social media using #Raregivers100

Frequently Asked Questions

Your story resonated deeply with our selection committee—volunteers from Microsoft, Netflix, Disney, Amazon, global pharmaceutical companies, patient advocacy groups, and public nominations. You were chosen based on your:
- Digital outreach
- Engagement with your network
- Commitment to raising awareness for Rare Disease
- Personal connection to the Rare Disease community
We’ve created a Digital Toolbox with downloadable resources to help you share the news. See below.
When posting, please tag #Raregivers100 to help us amplify your impact.
Stay connected by following us on social media and joining our community.
We’ll be recognizing the #Raregivers100 all year long through key awareness moments:
- May – Mental Health Awareness Month & Mother’s Day
- June – Father’s Day
- September 12, 2025 – Raregivers 25th Anniversary Celebration at Salesforce Tower, San Francisco (VIP invite only – Request here)
- October 10 – Global Mental Health Day
- November – National Family Caregivers Month