Raregivers Coalition - Non Profit Members

Raregivers Global is a dedicated community supporting individuals and families affected by rare, chronic and complex diseases. We partner with nonprofit organizations, advocates, and caregivers to create meaningful impact, raise awareness, and provide essential resources to those who need them most.

By joining Raregivers Coalition as a nonprofit coalition member, your organization becomes part of a powerful network committed to improving lives and strengthening the rare disease community worldwide.

Membership Benefits

As a Raregivers Global nonprofit coalition member, you will receive:

  • Invitation to bi-monthly coalition meetings

  • Official Raregivers Global membership badge

  • Your logo featured on the Raregivers Emotional Journey Map & Guidebook, distributed to Rare Disease Centers of Excellence (COEs) worldwide

  • Inclusion in Raregivers press releases and social media mentions (@tags)

  • A featured spotlight in the Raregivers newsletter

  • Engagement opportunities within one disease community or geographic focus area

  • Printed Raregivers Emotional Journey Maps for internal and community use

  • Participation in Raregivers virtual and in-person events

  • One guaranteed seat at the Raregivers Train The Trainer Leadership Retreat

  • Featured listing in the Raregivers Global nonprofit directory

  • Access to member-only webinars and workshops

  • Opportunities for collaboration and global campaigns

  • Promotion across Raregivers Global communication channels

Become a Member

By joining Raregivers Coalition as a nonprofit coalition member, your organization becomes part of a powerful network committed to improving lives and strengthening the rare disease community worldwide.