INDIANA UNIVERSITY NEEDS ASSESSMENT FOR THE RARE DISEASE COMMUNITY

Infographic by Indiana University School of Social Work on community needs assessment. Focuses on support needs for mothers of children with rare diseases. Methods include Zoom and Survey Monkey. Results show lack of support and suggest online support groups. Facts: 350 million have rare diseases; 7,000 types exist; 1 in 10 are affected; only 5% have treatments. Includes AngelAid Foundation logo and contact info.

Download the entire study here or view the infographic below.