Journeys of the Heart & UCSF Sustainable Caregivers Summit

Communication Toolkit

Expanding Global Reach to Support Raregivers 25th Anniversary Celebration

As we prepare to celebrate 25 years of impact on September 12th at Salesforce Tower in San Francisco, your voice is vital in helping us amplify this milestone moment. Whether you’re sharing the event with your community, inviting supporters to attend, or encouraging donations, your outreach plays a powerful role in honoring caregivers and expanding our global reach.

We’ve provided this Communications Toolkit to assist in amplifying our collective impact.

Communications Toolkit Includes:

✔ Talking Points – For discussing the Raregivers Coalition and its mission

✔ Social Media Captions – Pre-written for you to copy/paste onto LinkedIn, Facebook, Instagram, and/or Twitter/X

✔ Logos & Graphics – Assets for you to share websites, social media, and promotional materials

TALKING POINTS

Key Messages:

  • 1 in 10 families. 350 million people. 0 cures.
    Behind every rare disease diagnosis is a caregiver whose emotional health is often overlooked. Who is caring for the caregivers? Raregivers are.

  • Raregivers is celebrating 25 years of care, community, and advocacy with a full day of events in San Francisco—starting with a science-driven summit and culminating in a sunset celebration at Salesforce Tower.

  • The UCSF Sustainable Caregivers Summit will convene global experts in chronic stress, aging, and complex conditions to explore sustainable mental health solutions for those caring for people with rare, chronic, and life-limiting conditions.

  • The Raregivers Global Impact Awards will honor changemakers and caregivers from around the world—our #Raregivers100 Honorees—and shine a spotlight on the emotional journeys of families and professionals facing extraordinary challenges.

  • This is more than a celebration—it's a call to action. The mental health of caregivers is a global crisis. The events on September 12 will raise awareness and catalyze support for scalable solutions.

  • From a UCLA sorority house to Salesforce Tower, Raregivers has grown from a small grief support group into an international coalition, delivering 1.5 million hours of emotional relief and co-creating tools with some of the world’s leading experts.

  • Corporate and philanthropic partners are invited to join the Raregivers movement through sponsorships, social impact grants, in-kind donations, and employee engagement.

  • Only 200 VIP tickets available for the evening Global Impact Awards. Reserve your spot to stand alongside physicians, advocates, philanthropists, and caregivers.

SOCIAL MEDIA CAPTIONS

Facebook / LinkedIn / Instagram (Feed)

  • 💜 25 Years. 1.5 Million Hours of Care. On September 12, join us at Salesforce Tower in San Francisco to celebrate the global caregivers of the rare disease community. Our Global Impact Awards and #Raregivers100 Honorees will shine a light on those who give the most and ask for the least. Limited tickets available: https://raregivers25.funraise.org/ #Raregivers25 #Raregivers #GlobalImpactAwards #CaregiversMatter #RareDiseaseCare #FeelingsFirst

  • Who cares for the caregivers? 💙 We do. Join Raregivers for a day of science, storytelling, and celebration as we gather the world’s leading experts and changemakers to elevate emotional relief in rare disease care. Morning: UCSF Sustainable Caregivers Summit; Evening: Raregivers Global Impact Awards at Salesforce Tower. RSVP or donate: https://raregivers25.funraise.org #Raregivers25 #Raregivers #CaregiversMatter #RareDiseaseDayEveryday #MentalHealthMatters #FeelingsFirst

  • You’re invited to a once-in-a-generation celebration. We’re honoring 25 years of emotional support and global impact for rare disease families—with a day that brings together experts, advocates, and the caregivers who inspire us. 💜 🎉 September 12 | Salesforce Tower SF. Reserve your spot or donate here: https://raregivers25.funraise.org #Raregivers25 #Raregivers #Raregivers100 #JourneysOfTheHeart #CaregiversDeserveMore #FeelingsFirst

Instagram Stories / Reels (Captions)

  • 🎉 25 years of Raregivers 💜 Join us Sept 12 @ Salesforce Tower SF to celebrate the caregivers of the rare disease world. https://raregivers25.funraise.org 💪🌍 #Raregivers25 #Raregivers #GlobalImpactAwards #FeelingsFirst

  • Meet the real MVPs of rare disease care. 🏆 #Raregivers100 Honorees take the stage on Sept 12! RSVP: https://raregivers25.funraise.org
    #CaregiversMatter #Raregivers25 #Raregivers #FeelingsFirst

  • This event goes straight to the top. 🏙 Salesforce Tower. Sunset celebration. Global Impact. https://raregivers25.funraise.org #Raregivers25 #Raregivers #RareDiseaseDayEveryday

Twitter/X

  • 25 years. 1.5 million hours. Join @Raregivers Sept 12 at @SalesforceTower SF to celebrate caregivers worldwide. 🎉 RSVP: https://raregivers25.funraise.org #Raregivers25 #Raregivers #GlobalImpactAwards #FeelingsFirst

  • Who cares for the caregivers? 💜 We do—and we’re honoring them Sept 12 in SF with #Raregivers100 and the Global Impact Awards.
    👉     https://raregivers25.funraise.org #CaregiversMatter #Raregivers25 #Raregivers #RareDiseaseCare #FeelingsFirst

  • 🧠 Experts by day. 🌇 Celebration by night. @Raregivers hosts the UCSF Sustainable Caregivers Summit + Global Impact Awards on Sept 12.
    Limited tix:     https://raregivers25.funraise.org #Raregivers25 #Raregivers #MentalHealthMatters @raregivers

LOGOS & GRAPHICS

Please proceed to use these creative assets on your websites, emails, and/or social media.

  • Raregivers Logos

  • Event Flyer

  • Emotional Journey Map

  • Instagram Posts: 4:5 aspect ratio

Logo of Raregivers Global with a sun element over the letter 'i'.
Infographic titled 'Raregivers Emotional Journey Map,' illustrating the emotional stages for caregivers, patients, and professionals in rare disease care. It includes sections on noticing changes, adjusting to diagnosis, shifting responsibilities, full-time care, end of life, and finding meaning. Surrounding elements highlight relief, ongoing health financial navigation, and support resources like counseling, social connection, and self-care. Decorated with a scenic path, mountains, and two bridges symbolizing transitions. Logos of supporting organizations are at the bottom.
Logo with yellow sunburst and text "Rare givers .global" inside a circle.

NEXT STEPS

✔ Share the news on your social platforms using the messages provided

✔ Encourage your network to get involved in promoting our 25th Anniversary event on September 12th.

✔ Tag @raregivers in your posts

Thank you for your support in spreading awareness and making emotional relief for rare disease communities a global priority.

Together, we are empowering Raregivers™ worldwide.